MARY AND THE MUM VISITED OIFGHANA TO LEARN MORE ABOUT OI

Mary and the mum visited OIFGHANA to learn more about OI and to seek for assistance.
She was able to have Pamidronate treatment for the first time.
This treatment is aimed at reducing the rate of fracturing,increase bone strength and reduce bone pain.
The organisation was also happy to send Mary and the mum home with some splinting materials for fracture management,learning materials,etc for Mary's upkeep.

We are so proud of Mary and the mum for visiting OIFGHANA .
Thank you for being part of us.

OI Can OI will !!!!!!!!

GHANA LAUNCHES OSTEOGENESIS IMPERFECTA FOUNDATION

‘Personally, of all the (OI) conditions that I have seen, Afia Ayeyi is the only one that has survived’. That was the statement from a Paediatrician at the Cape Coast Teaching Hospital that attracted a deafening applause at the launch of OI Ghana on 6th May, 2017. In his presentation, Dr Steven Laryea cleared the misconceptions associated with the OI conditions in Africa and added that based on available statistics, OI is a rare condition, but there are survivors.

“Osteogenesis Imperfecta (OI) or Brittle Bone Disease is a genetic disorder that makes the bones of an individual break easily with little trauma or without any apparent reason.”

Read more