Ayeyi Yiadom-Boakye, had her wish of meeting the First Lady Rebecca Akufo-Addo come true. Ayeyi had in a TV3 report highlighting her condition, Osteogenesis Imperfecta, also known as brittle bone disease, told Portia Gabor she wishes to meet the mother of the land who she appealed to for help. Osteogenesis imperfect is caused by defective … Read more‘Special’ Ayeyi’s wish of meeting First Lady fulfilled
Report On The 2019 OI Awareness Week Held From The 5th-11th May, 2019. The Osteogenesis Imperfecta (OI) celebration started with a buildup of plastering our social media platforms with posters that reminded people of the upcoming celebration. This served as an opportunity for people to inquire more about the condition. The week started on the … Read moreReport On The 2019 OI Awareness Week
Host: Oheneyere Dr. Gifty Anti
Guests: Justina Yiadom-Boacky (Founder of OI Foundation Ghana) With Prof. Afua Hesse
Live on GTV and ABN TV. Watch the video below if you missed the show;
Mary and the mum visited OIFGHANA to learn more about OI and to seek for assistance.
‘Personally, of all the (OI) conditions that I have seen, Afia Ayeyi is the only one that has survived’. That was the statement from a Paediatrician at the Cape Coast Teaching Hospital that attracted a deafening applause at the launch of OI Ghana on 6th May, 2017. In his presentation, Dr Steven Laryea cleared the misconceptions associated with the OI conditions in Africa and added that based on available statistics, OI is a rare condition, but there are survivors.
“Osteogenesis Imperfecta (OI) or Brittle Bone Disease is a genetic disorder that makes the bones of an individual break easily with little trauma or without any apparent reason.”