PROFILE
Osteogenesis Imperfecta Foundation Ghana is a nonprofit, non-governmental organization set up to improve the quality of life of people living with OI in Ghana through education, awareness creation, treatments and mutual support. The foundation was inaugurated on 6th May 2017, a wishbone day (International Awareness Day for OI), set up by Mrs. Justina Yiadom-Boakye. Before she became an OI mother, there was very little information and no coherent data on the nature of the disease in Ghana. There was neither any system nor structured programme established in Ghana to ensure the wellbeing and survival of the highly vulnerable OI patients. After becoming an OI mother, being aware of the complexities that accompany the brittle bone disease, Justina Yiadom-Boakye was highly motivated to set up the Osteogenesis Imperfecta Foundation-Ghana.
MISSION
To improve the quality of life of people living with OI in Ghana through education, awareness creation, treatments and mutual support.
OBJECTIVES
· To create awareness and advocate for quality health care and treatment for OI patients in Ghana
· To assist in providing medical support to people living with OI
· To offer welfare and livelihood support to caregivers of OI patients.
· To embark on research and provide information pertinent to the African setting.
· To extend support to other disability groups and the community at large.